Yesterday, I was pleased to received a letter from the Hospital confirming I no longer need to attend hospital on a regular bases.
17 months ago, I started to suffer from breathing problems during my sleep. This problem would leave me waking up feeling overally hot and short of breath. It took me 9 months to tell anyone. My boyfriend made me tell my mum, and mum made me see a doctor. He was worried as I was having them almost every night and it made me feel sick in the mornings.
The doctors made me go for blood tests on New Year’s Eve last year.
The doctor called me about my blood test results and I was told that my blood cells where unusually inflamed. A normal persons cells can become inflame when you have a problem, if you have a cold a normal persons blood cells will inflame between 0-12 and mine where on 50.
3 weeks later I attended an appointment at the Heamotoligy department which is the study of blood. My mum was trying to park the car ( limited spaces, anyone who lives in Brighton will feel my pain) so I had to run to my appointment on my own. I was weighed and measured and we discussed family history, and lifestyle habits. After this she examined me and told me she was feeling for inflammation / lumps. After this she discussed with my that she was sending me for a CT scan to test for Lymthomia cancer.
5 days later I was at Haywards Heath having a CT scan between my neck to pelvis. They insisted a warm liquid into my body and I was placed into a machine for 15-20 mins.
I had to wait 6 weeks for my results, and the waiting game was the worst. Googling my symptoms and seeing they matches with this cancer. Reading that if it was deemed incurable, I could have three months to live. What would I do, I wouldn’t have treatment I would rather have a good quality of life. Would I be allowed to travel abroad? Would I get health insurance? I may never get to go to Thailand or Bora Bora.
6 weeks later, I was told that my CT scan came back fine. More bloods tests showed that my blood cells where still inflamed. Next, I was referred for tests of TB infection for this I was referred to a chest clinic and had a blood tests that was sent to London. I had chest X-rays, tested my breathing and lung capacity. Again, I waited for another 6 weeks for results. These also came back fine.
My next appointment they decided to test me for Anxitey, maybe I was having panic attacks in my sleep. This could be tested by the amount of Adrenaline glands and also by a 24 hour urine test. Peeing in a jug for 24 hours was not ideal. They where also testing to see if I had any Tumours.
6 weeks later, this came back fine as well.
Regulare blood tests had also shown that my blood cells where now inflamed to 29 and my problem had become less frequent. Due to this they decided that this problem was nothing life threatening and that it wasn’t something they could test for. There was a possibility that it could be a hormonal issue but this is not something they can test. If my issue is to get worst, I will need to return and be referred to an infection specialist.
This whole process took just under 7 months. I am great full for my mum being at every hospital appointment. This is the reason that I have decided to go traveling. This whole year has revolved around feeling ill most days, going for blood tests, ct scans, worrying that I may not live long. It has made me realise that every day is precious and you really do only live once.
I hope one day my problem will be non existence but until then I know that I am safe and I just have to get on with it.